From: Sue/WDW1972 on 19 Jul 2010 17:52 Rather than posting updates on my cancer treatment here, I created a CaringBridge website. You can follow my progress there. Visit my website in two easy ways: 1. Visit my CaringBridge website by clicking the link below. http://www.caringbridge.org/visit/sueholland1 2. Enter my website name, sueholland1, at www.CaringBridge.org. When you visit youll be asked to log in, because Ive chosen to keep the site private. There's no cost to join, and although there is a place to make donations to continue the site I am NOT asking anyone to do that. Big thanks to Maureen who sent me the link to this site thinking it'd be an easy way to get the word out to everyone. I'm hoping it might help allay the fears of anyone diagnosed in the future if they're able to read about my experience. Show your support Visit and keep up to date. Leave a message in my guestbook. Receive e-mail notifications when my journal is updated. Thank you. Sue/WDW1972
From: Keane on 19 Jul 2010 20:35 On Mon, 19 Jul 2010 14:52:09 -0700 (PDT), "Sue/WDW1972" <wdw1972(a)aol.com> wrote: >Rather than posting updates on my cancer treatment here, I created a >CaringBridge website. You can follow my progress there. > >Visit my website in two easy ways: > > 1. Visit my CaringBridge website by clicking the link below. > http://www.caringbridge.org/visit/sueholland1 > > 2. Enter my website name, sueholland1, at www.CaringBridge.org. > > >When you visit you�ll be asked to log in, because I�ve chosen to keep >the site private. There's no cost to join, and although there is a >place to make donations to continue the site I am NOT asking anyone to >do that. Big thanks to Maureen who sent me the link to this site >thinking it'd be an easy way to get the word out to everyone. I'm >hoping it might help allay the fears of anyone diagnosed in the future >if they're able to read about my experience. > >Show your support >� Visit and keep up to date. >� Leave a message in my guestbook. >� Receive e-mail notifications when my journal is updated. > > >Thank you. > >Sue/WDW1972 So, I assume they mean over 13 years old physically and not emotionally... Ugh. You're giving me all sorts of unpleasant flashbacks. In the first 7 days in the hospital when they were trying to figure out what was wrong with me, the first 4.5 days was all sorts of tests, but mostly waiting, doing nothing. Then a flurry of biopsies, chemo and bag changes of nasty chemical stuff they put in your veins. With all the beeping and bag changes and blood letting (blood samples every 4 hours, you learn to love certain phlebotomists), I got no sleep and was the closest I've ever been to just plain-for-real losing it. I guess I would have been scared crapless if I wasn't so sick. By the time I left, I had intimate knowledge and a deep hate for the IV pump. My new, only goal in life was to go home. I had diffuse large b-cell lymphoma. If you're new here, I also, sorta, chronicled my adventures, you can follow the updates on the left, which, I guess, I ought to complete. Any questions, drop me a note. http://keanespics.com/whines/whine.htm (Nothing as major as what Sue is going though, I just whined a lot...) Good luck Sue, many good wishes. Take a couple of good books! Healing is generally very boring. :-) Keane -- When stars are born, They possess a gift or two, One of them is this, They have the power to make a wish come true... -- Wishes Visit my site: http://keanespics.com
From: John L on 19 Jul 2010 22:20 Yo Sue. Thanks for the link. This brings flashbacks to me too. Regular flashbacks, not 'those' kind. :-) Back on December 21, 1979 (some dates are never forgotten) when I was 24 y/o I fell and hurt my leg and it never got better. Went to this orthopedic surgeon, Dr. George Kapakkas from the McKeesport (near pittsburgh) Hospital (now called UPMC) followed his instructions but nada. On February 18, 1980 I fell directly on my leg as it buckled under me and my femur snapped just above the knee. Doc said that big bone does just not break that 'easily'. He wanted to look into it. I spent 3 weeks in the hospital when they found a giant-cell sarcoma (a cancerous tumor) in my knee just beginning to form. rot-roh. That was when the fear first struck me. They sent me home and scheduled surgery for April. I was 2 weeks in the hospital the second time. It was a rare surgery and they had to have a specialist fly up from Florida to Pittsburgh. Caren if you've ever been to the Shadyside Hospital in Pgh he spent several years there; Dr. Mark Goodman. Anyway, they had over 30 people in the O-R, 20 were just observing and it was even filmed for learning. I had to sign all kinds of waivers but I thought if this can help someone else, okie dokie. They removed the entire knee joint and used a fitted titanium steel rod to slide it up into the top of my leg then down into it. They used the small bones from both of my legs (fibula?) to make grafts where the knee used to be. I cannot bend my leg anymore but God has been so so good to me. Never had to have chemo, never had to have radiation and it is in my left leg so I can still drive. "Count your many blessings name them 1 by 1, and it will surprise you what the Lord has done". Sue, more peace love and power is on its way to you. Take care and have faith. This will go well. peace. john
From: --Fizzie on 19 Jul 2010 22:26 On Jul 19, 5:52 pm, "Sue/WDW1972" <wdw1...(a)aol.com> wrote: > Rather than posting updates on my cancer treatment here, I created a > CaringBridge website. You can follow my progress there. > > Visit my website in two easy ways: > > 1. Visit my CaringBridge website by clicking the link below. > http://www.caringbridge.org/visit/sueholland1 > > 2. Enter my website name, sueholland1, atwww.CaringBridge.org. > > When you visit youll be asked to log in, because Ive chosen to keep > the site private. There's no cost to join, and although there is a > place to make donations to continue the site I am NOT asking anyone to > do that. Big thanks to Maureen who sent me the link to this site > thinking it'd be an easy way to get the word out to everyone. I'm > hoping it might help allay the fears of anyone diagnosed in the future > if they're able to read about my experience. > > Show your support > Visit and keep up to date. > Leave a message in my guestbook. > Receive e-mail notifications when my journal is updated. > > Thank you. > > Sue/WDW1972 I went to your site and read and I have to be honest....it scared the heck out of me. You cancer survivors are my heroes. I hope that before long all this will just be a memory for you. I will meditate for you daily, along with others I have met here, and send the best mojo I can your way. Love and hugs --Fizzie
From: "LinLee" lee tee 1 1 at a t t d o t n e on 20 Jul 2010 07:08 "Sue/WDW1972" <wdw1972(a)aol.com> wrote in message news:5e7c6090-8cdf-4564-91b6-1819468506d7(a)c10g2000yqi.googlegroups.com... Rather than posting updates on my cancer treatment here, I created a CaringBridge website. You can follow my progress there. Visit my website in two easy ways: 1. Visit my CaringBridge website by clicking the link below. http://www.caringbridge.org/visit/sueholland1 2. Enter my website name, sueholland1, at www.CaringBridge.org. When you visit you�ll be asked to log in, because I�ve chosen to keep the site private. There's no cost to join, and although there is a place to make donations to continue the site I am NOT asking anyone to do that. Big thanks to Maureen who sent me the link to this site thinking it'd be an easy way to get the word out to everyone. I'm hoping it might help allay the fears of anyone diagnosed in the future if they're able to read about my experience. Show your support � Visit and keep up to date. � Leave a message in my guestbook. � Receive e-mail notifications when my journal is updated. Thank you. Sue/WDW1972 Thanks for the link. Hang in here, Sue. You have more friends than you will ever know. Take care of yourself. We will be sending prayers and pixie dust for you. LinLee
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